The music parade La Murga de la Llagosta gets wet for ALS

09/10/2014 12:01

For the first time in 30 years, the music parade “La Murga de la Llagosta” dedicated their celebration to the research in Amyotrophic Lateral Sclerosis (ALS), led at Vall d’Hebron Institute of Research (VHIR) by Dr. Josep Gámez.

 

Antonio Melgar suffers this devastating disease and José Antonio Monterrubio’s mother died because of ALS. Both are members of “La Murga” and, coinciding with the successful Ice Bucket Challenge campaign, they decided to raise funds for research.

 

Besides the music parade, they organized a big paella for all the participants, a contest of potato omelettes, a party for children and a concert of “habaneras”. With all these activities, they raised more than 1,100 euros that will fund the research carried out by the group of Peripheral Nervous System, led by Dr. Gámez. His group is currently working on three different research lines dedicated to the study of molecular mechanisms and genetic mutations of the disease. The group is also part of ALSUntangled, an international network of clinical experts with the aim of offering alternative or off-label ALS treatments.

 

Besides the research team, the Vall d’Hebron University Hospital has an interdisciplinary unit devoted to the care of ALS patients, which serve nearly 100 out of the 400 affected that are in Catalunya. The cause of ALS is unknown and there is no cure or treatment available. It is a debilitating disease characterized by the loss of motor neurons which cause rapidly progressive weakness, muscle atrophy and the death of the patients by breathing failure.

 

 

 

From left to right: Dr. Maria Salvadó, José Antonio Monterrubio,

 Dr. Josep Gámez and Antonio Melgar.

 

(VHIR).